Frequently Asked Questions
IS THIS A “ONE-SIZE-FITS-ALL” APPROACH TO TREATMENT?
No! We find that traditional treatment of POTS (blood volume expansion, beta-blockers, antidepressants, and exercise) not only does nothing to treat the underlying medical cause of POTS; it presumes all patients are the same. Instead, we dig deeply to locate what others have missed, including possible abnormalities with intracranial pressure, vagus nerve problems, immune system disorders, endocrine abnormalities, vascular issues, and abnormal inflammation.
Only by treating every patient as an individual case and moving far beyond symptomatic treatment can the majority of patients recover from Idiopathic POTS. Our job is to locate these issues as quickly and as non-invasively as possible, so that patients are no longer shuffled from specialist to specialist, with no one looking at the big picture. Not only is that approach often unsuccessful, but it can also take months or years for complete evaluations.
HOW DOES THE TWO-MONTH-LONG PROGRAM WORK?
First, you will work with us at POTS Care (usually virtually) for approximately 3 days for your evaluation. At the end of that time, you will be provided with a preliminary treatment plan, prescriptions for medications and supplements needed, and dietary and exercise recommendations, beginning your road to recovery! You will also begin a 3 month series of audios chosen just for you to teach, inform, and coach you through the process. You will be provided with an HRV monitor (wearable technology) to help with anxiety and surges of adrenaline that can be common in this condition. This is the latest in biofeedback devices that although not a cure, can assist you with some symptoms.
Over the next three weeks, we evaluate your new blood work as it is available and your response to treatment thus far and make adjustments to your treatment plan based on these results.
Three weeks later, we will have a telephone or Skype meeting to cover your detailed final treatment plan with you. At the time of this final summary, you will have copies of your record, your blood work, and your final summary. We will make sure you have all of your questions answered, and we will contact you weekly for another month to help you on your road to recovery.
This arrangement gives us the necessary time with you, yet allows you and your friends or family to support you without travel. We know how difficult it can be to travel, to be away from home, and to ask others to interrupt their schedules for long periods of time. We hope this arrangement eliminates some of the frustration of multiple doctor visits with large gaps of time in between. We’d like to shorten your journey for answers to your POTS!
WHO ARE YOUR DOCTORS? ARE THEY FAMILIAR WITH POTS, CHRONIC FATIGUE SYNDROME/M.E., OR EHLERS-DANLOS SYNDROME?
Dr. Diana Driscoll, Optometrist and Clinical Director, is an EDS patient who recovered from POTS, as have her children. Dr. Derek Lang, DO is the clinic’s Medical Director, and Dr. Stephanie Cudjoe, MD is integral in patient care.
Dr. Diana Driscoll began studying POTS and running numerous clinical trials when traditional treatment for POTS failed her and her children, and she was convinced there were medical reasons for their illness. Dr. Driscoll established Genetic Disease Investigators, LLC to conduct studies and began finding answers via unique ocular testing. You may know Dr. Driscoll from her site www.Prettyill.com where she provides informational videos concerning EDS (Ehlers-Danlos syndrome), mast cell activation disorders, chronic fatigue, hyperadrenergic POTS, and other forms of dysautonomia and POTS. She has worked tirelessly to promote awareness and education concerning these conditions, is recognized as the first person to use the now common #EDS hashtag on Twitter, and has reached out to help others on her forum at Prettyill.com, now known worldwide.
DOES YOUR TREATMENT PLAN INVOLVE HIGH DOSES OF SALT AND FLUIDS, BETA-BLOCKERS AND BLOOD-EXPANDERS?
IS THIS TREATMENT CENTERED AROUND BIOFEEDBACK TRAINING?
I DON’T FEEL WELL AND I WORRY ABOUT TOO MUCH WALKING, STANDING OR EVEN THINKING! HOW EXHAUSTING IS THE VISIT?
HOW MUCH DOES IT COST?
HOW CAN I PAY?
WHY DOESN’T MY HEALTH PLAN COVER THIS?
DO YOU TAKE MEDICARE OR MEDICAID?
DO YOU REQUIRE AN OFFICIAL DIAGNOSIS OF POTS TO SEE ME?
CAN YOU HELP MY KIDS?
I BELIEVE I HAVE MAST CELL ACTIVATION SYNDROME (MCAS). CAN YOU HELP ME?
I’VE BEEN TO THE EXPERTS WITH NO REAL HELP. WHY SHOULD I TRUST YOU?
CAN MY DOCTOR(S) CONTINUE MY CARE AFTER I LEAVE, OR DO I NEED TO RETURN TO POTS CARE?
WILL YOU RUN BLOOD TESTS?