Postural Orthostatic Tachycardia Syndrome

Dr. Diana Driscoll, Clinical Director of POTS Care, explains how the clinic differs from others, and explains a bit about her recovery and that of her children.

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Intensive, Two Month Program

 
First, you will be with us at POTS Care for approximately 4 days for your evaluation. At the end of that time, you will leave with a preliminary treatment plan in place, medications and supplements needed, and dietary and exercise recommendations, beginning your road to recovery! Over the next three weeks, we evaluate your new blood work as it is available and your response to treatment thus far, and make adjustments to your treatment plan based on these results.
We will then have a telephone or Skype meeting to cover your detailed final treatment plan with you. At the time of this final summary, you will have copies of your record, your blood work, and pertinent testing results. We will make sure you have all of your questions answered, but will continue to work with you for another month before then sending you some guidelines on how to manage your underlying medical condition that caused POTS to begin with.
This arrangement gives us the necessary time with you, yet allows you and your friends or family to return home as soon as possible. We know how difficult it can be to travel, to be away from home, and to ask others to interrupt their schedules for long periods of time. We hope this arrangement eliminates some of the frustration of multiple doctor visits with large gaps of time in between. We’d like to shorten your journey for answers to your POTS!
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POTS Syndrome Treatment

 

How We Evaluate POTS

A tough disorder like POTS (Postural Orthostatic Tachycardia Syndrome), a form of dysautonomia, requires a close analysis of all of your symptoms — simultaneously. This unprecedented approach can provide answers much more efficiently than traditional problem-focused medical visits. We also look for evidence of your underlying medical cause with extensive ocular testing. The eyes are the only place in the body we can look directly at both blood vessels and the optic nerve — and both can provide essential clues and do so noninvasively. Blood work is generally necessary, but we reach far beyond traditional tests and look at immune function, autoimmunity, inflammatory conditions, endocrine studies, and other easily missed contributors to POTS.
 
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Chronic Fatigue

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Frequently Asked Questions

No! We find that traditional treatment of POTS (blood volume expansion, beta-blockers, antidepressants, and exercise) not only does nothing to treat the underlying medical cause of POTS; it presumes all patients are the same. Instead, we dig deep to locate what others have missed, including possible abnormalities with intracranial pressure, vagus nerve problems, immune system disorders, endocrine abnormalities, vascular issues, and abnormal inflammation. Only by treating every patient as an individual case and moving far beyond symptomatic treatment can the majority of patients recover from Idiopathic POTS. Our job is to locate these issues as quickly and as non-invasively as possible, so that patients are no longer shuffled from specialist to specialist, with no one looking at the big picture. Not only is that approach often unsuccessful, but it can also take months or years for complete evaluations.

First, you will be with us at POTS Care for approximately 3 days for your evaluation. At the end of that time, you will leave with a preliminary treatment plan in place, medications and supplements needed, and dietary and exercise recommendations, beginning your road to recovery! You will also begin a 3 month series of audios chosen just for you to teach, inform, and coach you through the process. You will also leave with a biosensor (wearable technology) to help with anxiety and surges of adrenaline that can be common in this condition. This is the latest in biofeedback devices that although not a cure, can assist you with some symptoms.

Over the next three weeks, we evaluate your new blood work as it is available and your response to treatment thus far, and make adjustments to your treatment plan based on these results.

Three weeks later, we will have a telephone or Skype meeting to cover your detailed final treatment plan with you. At the time of this final summary, you will have copies of your record, your blood work, and your final summary. We will make sure you have all of your questions answered, and we will contact you weekly for another month should new questions arise.

This arrangement gives us the necessary time with you, yet allows you and your friends or family to return home as soon as possible. We know how difficult it can be to travel, to be away from home, and to ask others to interrupt their schedules for long periods of time. We hope this arrangement eliminates some of the frustration of multiple doctor visits with large gaps of time in between. We’d like to shorten your journey for answers to your POTS!

Dr. Diana Driscoll, Clinical Director, is an EDS patient who recovered from POTS, as have her children. Dr. Diana Driscoll began studying POTS and running numerous clinical trials when traditional treatment for POTS failed her and her children, and she was convinced there were medical reasons for their illness. Dr. Diana Driscoll together with her husband, Dr. Rich Driscoll, established Genetic Disease Investigators, LLC to conduct studies and began finding answers via unique ocular testing. You may know Dr. Diana Driscoll from her site www.Prettyill.com where she provides informational videos concerning EDS (Ehlers-Danlos syndrome), mast cell activation disorders, chronic fatigue, hyperadrenergic POTS, and other forms of dysautonomia and POTS. She has worked tirelessly to promote awareness and education concerning these conditions, is recognized as the first person to use the now common #EDS hashtag on Twitter, and has reached out to help others on her forum at Prettyill.com, now known worldwide.

All physicians, PA’s, and staff on the team are carefully selected for their experience in “invisible illnesses”, their compassion and patience. Some physicians assist directly in patient care, while others are available for consultation as needed.

An integral part of the team are the doctors who work behind the scenes. POTS Care has licensed the rights to use the collective knowledge obtained by the research of a variety of specialists involved in Genetic Disease Investigators, LLC. This new model for evaluation and treatment was a necessary step in providing patients with the best care possible in the least amount of time possible.

No. Traditionally, these medications have been recommended for symptomatic relief of POTS, but these medications do not address the underlying medical problem resulting in POTS. Depending upon the underlying cause(s) of your case of POTS, these medications may actually be worsening your condition. Sometimes helpful for patients in the short-term, we do not recommend them for long-term management. Instead, our effort will go towards locating and treating the underlying cause of POTS and its numerous comorbid conditions.

No. Biofeedback is included for you and it can be helpful to control some aspects of POTS, especially when surges of some chemicals cause “hyperadrenergic” response of the body. These surges can easily be diagnosed as “anxiety” by the uninformed. At POTS Care, we focus on the medical problems that contribute to POTS and utilize the latest in wearable technology (a form of biofeedback that goes with you) to help control these surges. We find that biofeedback alone is insufficient for recovery.

At POTS Care, we understand what is like to suffer with POTS and other invisible illnesses. We are sensitive to your needs for rest, a comfortable reclining position, lots of fluids, low stress, low light levels, etc. We also understand the difficulties with brain fog and exhaustion – especially if you need to travel to get to us. We do our very best to accommodate your needs, and you need not feel embarrassed should you require special care. Just let us know what you need, and we will do our best to work around your body’s requirements.

We charge $8,800 for your evaluation and treatment for two months of care when you pay with a credit card, your flex spending account, or a check. This fee does not include your lodging (we will provide you with information on some great local hotels). We also offer financing plans (many are interest-free).

You can pay with cash, check, credit card, your Flexible Spending Account (FSA), Health Savings Account (HSA) or you can make payments through our credit program (many payment plans are interest-free). We do not accept Medicare or Medicaid, nor do we bill insurance companies. Your receipt will generally be adequate for your FSA or HSA programs, however.

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