Postural Orthostatic Tachycardia Syndrome

Testimonial

Madison’s Story

Madison’s Story

“It is worth the drive, the money, everything. It is totally worth it. In four days, my child feels better than she has probably in three months, just to see her being able to get out of bed and straighten her hair and doing her makeup and then feel like even going out after she has been here all day that is a plus, so I would do it all over again.” 
 
Madison came to POTS Care after suffering for 4 years with diagnoses of POTS, ADD, and congenital myopathy. It was only by reviewing her entire case from the beginning that we were able to locate what others had missed and began treatment immediately. Madison leaves POTS Care feeling better than she has in months, and with a solid treatment plan.
Madison's Story

**11 months after coming to POTS Care, Madison continues to do well. Her mom writes, “Madison is doing great!! She is a different child! She has energy and can do things she couldn’t do before. She had some bloodwork done and her D-Dimer (measure of clotting) is no longer elevated. Her CO2 is staying well above 21. It is around 27 now with no baking soda and she’s not been taking the Diamox. She’s not had a headache or the shoulder pain since January. I’m so thankful that God led us to you all so we could get to the bottom of Madison’s issues. Please keep in tough with us!! Madison will be graduating in May!!

**Four weeks after coming to POTS Care: In just 4 short weeks, Madison has improved immensely. She was able to attend an outdoor concert, in the heat, where she was on her feet for 5 and a half hours. Madison was also able to enjoy party activities after the concert, well into the evening. Before coming to POTS Care this would have been out of the question for Madison. We are thrilled to see her doing so well, and are excited to see even more improvements!

 

INTERVIEWER: Thank you for talking with us today, Angela. First, could you just tell us a little bit about Madison’s journey with POTS?

PATIENT’S MOTHER: She actually started off with just migraines and passing out, that was the initial thing that took us to the doctor. Over the last probably three or four years is when we have been dealing with it and over the last probably nine months she has just progressively gone downhill. She started having chest pains, heart attack type symptoms, and severe, severe fatigue so that is what kind of led us here.

INTERVIEWER: : I know you have seen a bunch of doctors, were they able to get you any help at all?

PATIENT’S MOTHER: :It seems like maybe they tried to help, the first doctor really did not do a whole lot, so we ended up with a cardiologist and he put us on some medications and told us to drink 7 liters of fluid a day and up to 10 gm of salt a day that is not possible for one person to do, so we just decided to search for something different that was more easy to do because that was not feasible.

INTERVIEWER: Do you feel like the care that you received at POTS Care was different than the care you have received at other doctors?

PATIENT’S MOTHER: Most definitely. Rather than just looking at the symptoms that she was having at that time or that we felt were POTS related, we were given a whole other spectrum of symptoms that we did not even know were related to POTS or to her, so that tremendously helped and the fact that someone just sat down and talked to us for an extended amount of time to kind of get to know her and me and that was awesome.

INTERVIEWER: Was POTS Care able to find anything that other doctors have missed before?

PATIENT’S MOTHER: Yes, most definitely. The inflammation thing, no one has ever checked for inflammation. Before then, we did not even really know that there was such a thing as inflammatory POTS. We were just always told that most POTS patients had orthostatic hypotension, headaches, they passed out and that was about it. So to know that there were different types and then of course with the clotting thing that was a huge thing that could affect her potentially down the road, so yes we are very glad that that has been discovered.

INTERVIEWER: Do you feel like we are basing things here on real science?

PATIENT’S MOTHER: Most definitely. Everything we have been put on to try, everything we have been told has a scientific background. They all have provided us with research studies, published research studies. So, yes I definitely think everything has been based on science.

INTERVIEWER: What would you say to people that are thinking about coming to POTS Care?

PATIENT’S MOTHER: It is worth the drive, the money, everything. It is totally worth it. In four days, my child feels better than she has probably in three months, just to see her being able to get out of bed and straighten her hair and doing her makeup and then feel like even going out after she has been here all day that is a plus, so I would do it all over again.

INTERVIEWER: Thank you again for talking with us today, Angela.



Anneke’s Story

Anneke’s Story “Along with the reassurance that the team at POTS Care gave my mum and I, they also impressed us with the immense amount... ...



Mary’s Story

Mary’s Story “At POTS Care they look at why a patient has POTS, not just how to cope with or cover up the symptoms.” Mary... ...



Ross’ Story

Ross’ Story “The first thing that I noticed in speaking to the POTS Care team is that they are fully dedicated and committed to making... ...



Pami’s Story

Pami’s Story “The visit is worth every penny. The doctors and staff are great, helpful, and understanding. It’s amazing the information they can get from... ...



Maranda’s Story

Maranda’s Story “I found a doctor that helped me and suggested that I go to POTS Care after carefully ruling out other causes.”   After... ...



Alaina’s Story

Alaina’s Story “I think anyone with POTS should come here because they are really focused on how to heal you instead of just covering it... ...



Kimbree’s Story

Kimbree’s Story “I really have faith that Dr. Driscoll and everyone here at POTS Care can help you! Your suffering doesn’t have to go on... ...



LauraKate’s Story

Laura Kate’s Story “Dr. Driscoll always brings it back to the science part, which is really reassuring.” LauraKate came to POTS Care after suffering with... ...



Rachel’s Story

Rachel’s Story “At POTS Care, instead of masking symptoms, all data is taken from my daughter to provide an elegant and specific solution.” Rachel came... ...



Lafonda’s Story

Lafonda’s Story “It is all about finding hope and healing, and you take my whole self not just one body system or one symptom and... ...



Joshua’s Story

Joshua’s Story “Lots of other places will tell you that it is in your head, that you just need exercise or drink more water, more... ...



Denise’s Story

Denise’s Story “Your health is the most important thing in your life, and money can’t buy health. It’s coming to POTS Care that is worth... ...



Jaydon’s Story

Jaydon’s Story “I never thought healing from POTS could happen. I just thought it would be addressing symptoms enough to get by. Instead, I feel... ...



Natalie’s Story

Natalie’s Story “Prior to coming to POTS Care, I was passing out multiple times a day and yet after beginning treatment, I suddenly I went... ...



Marcie’s Story

Marcie’s Story “Dr. Diana wisdom along with her personal experience with this illness has given her incredible insight — insight that she desires to share!”... ...



Annie’s Story

Annie’s Story “I think this is the first time that anyone that has tried to help me has treated me like I am not crazy.... ...



Sarah’s Story

Sarah’s Story “You walk in and from minute one there is no question that your whole illness is validated, they understand, they care, they want... ...



Shelby’s Story

Shelby’s Story “Very few people know and even fewer can understand how difficult these past few years have been for Shelby, but I know that... ...



Katie’s Story

Katie’s Story “Dr. Driscoll took the time to listen and to really get to the bottom of what is causing my body to have POTS... ...



Shelly and Allison’s Story

Shelly and Allison’s Story “It is personal here, it is not just a blanket treatment. The doctors truly go in and look at everything individually.”... ...



Kris’s Story

Kris’s Story “I’ve been feeling very well. I’ve been able to be more active with my children, garden, work on my hobbies, go out with... ...



Catherine’s POTS Story

Catherine’s Story “Dr. Driscoll has absolutely remarkably, just been like a forensic detective, and given me the first bit of hope that I have had... ...



Madison’s Story

Madison’s Story “It is worth the drive, the money, everything. It is totally worth it. In four days, my child feels better than she has... ...



Malia’s Story

Malia’s Story “I have had doctors, who cared about me, but could not help me, but I feel like Dr. Driscoll is the part that... ...



Julie’s Story

Julie’s Story “I have never had so much attention paid to Morgan and me, even if you add up all her doctors’ visits together. The... ...



Bobbie Kay’s Story

Bobbie Kay’s Story “POTS Care has been amazing, and one of the best weeks I think we have had the entire time she has been... ...



CeCe’s Story

CeCe’s Story “I have gotten more answers in this one week at POTS Care than I have gotten in the four years that I have... ...



Megan’s Story

Megan’s Story “You guys won’t believe the difference I can already see and feel in my life! Thank you so much for saving my life... ...



Ainsley’s Story

Ainsley’s Story “All of my symptoms have gotten so much better. I no longer have to plan my day around my symptoms. My dizziness and... ...



Krissie’s Story

Krissie’s Story “I got immediate relief for constipation, surprisingly. Also, the energy that I had, I mean I can feel it today… I feel really... ...



Katrina’s Story

Katrina’s Story “My insomnia has been terrible for years…, (but this week) I have slept for at least eight and a half hours each night…... ...



Skye’s Story

Skye’s Story “I have more energy than I’ve had in a long time. I had so much energy at POTS Care one day that I... ...



Susan’s Story

Susan’s Story “The help I got with my fatigue and gastroparesis was worth driving 26 hours to get! That alone was worth the price of... ...



Catherine’s Story

Catherine Story “Come, just come, because it will make such a big change in your life just to have someone who understands! Dr. Driscoll has... ...



Dr. Vicky’s Story

Dr. Vicky’s Story “Finding a resource like POTS Care where not only are the people familiar with it, they are compassionate towards it, have answers,... ...



Taylor’s Story

Taylor’s Story “I would say even three weeks after I came home it became a lot easier to get out of bed, I was not... ...