Clinicaltrials.org NCT#01367977 Preliminary results of this study revealed abnormally fast growth of head circumferences (as opposed to the lengths and weights) in babies who were later diagnosed with EDS (“Ehlers-Danlos syndrome”) / POTS (“Postural Orthostatic Tachycardia Syndrome”). Enlarged head circumferences as found by this study hinted at, yet could not prove, the presence of high intraocular pressure (“IIH”) in these children. Many of these children were not well and many suffered from an array of neurological symptoms such as seizures, epilepsy, cataplexy, and narcolepsy. Attention then turned to the role of idiopathic intraocular hypertension in both children and adults with EDS/POTS.
