At POTS Care, our Clinical Director (Dr. Diana Driscoll) was diagnosed with Ehlers-Danlos syndrome (hEDS) as were her two children. She was told that POTS was secondary to EDS. She was told that POTS in EDS patients was likely due to a gradual laxity of vessels over time.

Although this sounded plausible to her, Dr. Driscoll became ill merely weeks after a virus – and she was 46 at the time! There was nothing gradual about the development of POTS in her case. And when her son developed POTS after a series of three viruses at the age of eight, she knew this theory was likely incorrect.

It was only by abandoning the current views and digging deeply she was able to get answers for her family and so many others. Now fully recovered from POTS, she works full-time at POTS Care to help others locate the cause of their POTS.

At POTS Care, the entire team is very familiar with EDS and the special challenges these patients face. POTS is not a necessary consequence of EDS.