Postural Orthostatic Tachycardia Syndrome

Testimonial

Shelly and Allison’s Story

Shelly and Allison’s Story

“It is personal here, it is not just a blanket treatment. The doctors truly go in and look at everything individually.”

Shelly and Allison, mother and daughter, came to POTS Care for treatment together. Shelly has been ill her entire life, and was labeled with the diagnoses fibromyalgia and mitral valve prolapse. Allison has been ill for about 3 years, and was also given a diagnosis of mitral valve prolapse. Although Shelly and Allison have extremely different cases, we were able to locate the individual underlying causes for their illnesses and they left POTS Care with individualized treatment plans.

“5 months after coming to POTS Care, Allison is ‘”shufflin”!”

INTERVIEWER: Thank you for talking with us today, Shelly and Allison. Could you guys please share with us what your journey with POTS has been like?

Shelly: My worst symptoms were the fatigue and tiredness and it just kept worsening. I think the worst for me above and beyond my symptoms was just actually trying to find somebody who could actually help me. There was a lot of time, energy and money that I felt I didn’t have trying to find somebody who was knowledgeable about what was going on with me, that was the worst part.

INTERVIEWER: How long have you been sick? Shelly: I am 50 years old and I have had symptoms wax and wane throughout my life, but it worsened in 2010. It was just like my health started really going downhill to the point where I ended up being bedridden in 2012.

INTERVIEWER: Allison, what about you? Do you want to tell us a little bit about your symptoms, what you have been through, how long you have been sick?

Allison: I have been sick for a good three years now. It has affected my life drastically. I am 18 years old now, and I am so sick and fatigued and in pain. It is cruel. It has prevented me from making friends and having a normal typical teenager life and going to school.

INTERVIEWER: Were we able to identify any underlying problems that others have missed before?

Shelly: Absolutely. Just as an example of what’s familiar is digestion; prior to Dr. Driscoll’s opinion, it was just I have slow digestion, that was it, and nobody ever dug deeply and I really think that was a big reason why nobody understood. Therefore, my symptoms kept worsening throughout the time. So, she absolutely was able to get to cause with everything she looked at, since she is really good at symptom discovery and just dug. It is personal here, it is not just a blanket treatment. The doctors truly go in and look at everything individually.

INTERVIEWER: Do you feel like we are using real science here?

Shelly: Oh, yes. I appreciated the fact that she would address things, this is based on science, this was based on objective findings. So, it was good to remember that, especially somebody like myself who has been doing my own research. It’s very ambiguous whether to say if it was somebody’s opinion or if it was really from a study. She is very deliberate, she took the time to do that and she would actually mention that that this was based on such, such and such. Oh, yes, that was very clear to me.

INTERVIEWER: Do you both feel like you have a better grasp on how to deal with your condition now?

Shelly: Absolutely 100% positively, yes.

INTERVIEWER: Is there anything else you’d like to add today?

Shelly: I just wished I would’ve found POTS Care six years ago, to save the time and the energy and the money. It is just definitely worth the price moreover. I wish I had given her all the money I spent on other things. I feel like we are both going to start a new life now.

INTERVIEWER: Thank you for talking with us today, Shelly and Allison!



Anneke’s Story

Anneke’s Story “Along with the reassurance that the team at POTS Care gave my mum and I, they also impressed us with the immense amount... ...



Mary’s Story

Mary’s Story “At POTS Care they look at why a patient has POTS, not just how to cope with or cover up the symptoms.” Mary... ...



Ross’ Story

Ross’ Story “The first thing that I noticed in speaking to the POTS Care team is that they are fully dedicated and committed to making... ...



Pami’s Story

Pami’s Story “The visit is worth every penny. The doctors and staff are great, helpful, and understanding. It’s amazing the information they can get from... ...



Maranda’s Story

Maranda’s Story “I found a doctor that helped me and suggested that I go to POTS Care after carefully ruling out other causes.”   After... ...



Alaina’s Story

Alaina’s Story “I think anyone with POTS should come here because they are really focused on how to heal you instead of just covering it... ...



Kimbree’s Story

Kimbree’s Story “I really have faith that Dr. Driscoll and everyone here at POTS Care can help you! Your suffering doesn’t have to go on... ...



LauraKate’s Story

Laura Kate’s Story “Dr. Driscoll always brings it back to the science part, which is really reassuring.” LauraKate came to POTS Care after suffering with... ...



Rachel’s Story

Rachel’s Story “At POTS Care, instead of masking symptoms, all data is taken from my daughter to provide an elegant and specific solution.” Rachel came... ...



Lafonda’s Story

Lafonda’s Story “It is all about finding hope and healing, and you take my whole self not just one body system or one symptom and... ...



Joshua’s Story

Joshua’s Story “Lots of other places will tell you that it is in your head, that you just need exercise or drink more water, more... ...



Denise’s Story

Denise’s Story “Your health is the most important thing in your life, and money can’t buy health. It’s coming to POTS Care that is worth... ...



Jaydon’s Story

Jaydon’s Story “I never thought healing from POTS could happen. I just thought it would be addressing symptoms enough to get by. Instead, I feel... ...



Natalie’s Story

Natalie’s Story “Prior to coming to POTS Care, I was passing out multiple times a day and yet after beginning treatment, I suddenly I went... ...



Marcie’s Story

Marcie’s Story “Dr. Diana wisdom along with her personal experience with this illness has given her incredible insight — insight that she desires to share!”... ...



Annie’s Story

Annie’s Story “I think this is the first time that anyone that has tried to help me has treated me like I am not crazy.... ...



Sarah’s Story

Sarah’s Story “You walk in and from minute one there is no question that your whole illness is validated, they understand, they care, they want... ...



Shelby’s Story

Shelby’s Story “Very few people know and even fewer can understand how difficult these past few years have been for Shelby, but I know that... ...



Katie’s Story

Katie’s Story “Dr. Driscoll took the time to listen and to really get to the bottom of what is causing my body to have POTS... ...



Shelly and Allison’s Story

Shelly and Allison’s Story “It is personal here, it is not just a blanket treatment. The doctors truly go in and look at everything individually.”... ...



Kris’s Story

Kris’s Story “I’ve been feeling very well. I’ve been able to be more active with my children, garden, work on my hobbies, go out with... ...



Catherine’s POTS Story

Catherine’s Story “Dr. Driscoll has absolutely remarkably, just been like a forensic detective, and given me the first bit of hope that I have had... ...



Madison’s Story

Madison’s Story “It is worth the drive, the money, everything. It is totally worth it. In four days, my child feels better than she has... ...



Malia’s Story

Malia’s Story “I have had doctors, who cared about me, but could not help me, but I feel like Dr. Driscoll is the part that... ...



Julie’s Story

Julie’s Story “I have never had so much attention paid to Morgan and me, even if you add up all her doctors’ visits together. The... ...



Bobbie Kay’s Story

Bobbie Kay’s Story “POTS Care has been amazing, and one of the best weeks I think we have had the entire time she has been... ...



CeCe’s Story

CeCe’s Story “I have gotten more answers in this one week at POTS Care than I have gotten in the four years that I have... ...



Megan’s Story

Megan’s Story “You guys won’t believe the difference I can already see and feel in my life! Thank you so much for saving my life... ...



Ainsley’s Story

Ainsley’s Story “All of my symptoms have gotten so much better. I no longer have to plan my day around my symptoms. My dizziness and... ...



Krissie’s Story

Krissie’s Story “I got immediate relief for constipation, surprisingly. Also, the energy that I had, I mean I can feel it today… I feel really... ...



Katrina’s Story

Katrina’s Story “My insomnia has been terrible for years…, (but this week) I have slept for at least eight and a half hours each night…... ...



Skye’s Story

Skye’s Story “I have more energy than I’ve had in a long time. I had so much energy at POTS Care one day that I... ...



Susan’s Story

Susan’s Story “The help I got with my fatigue and gastroparesis was worth driving 26 hours to get! That alone was worth the price of... ...



Catherine’s Story

Catherine Story “Come, just come, because it will make such a big change in your life just to have someone who understands! Dr. Driscoll has... ...



Dr. Vicky’s Story

Dr. Vicky’s Story “Finding a resource like POTS Care where not only are the people familiar with it, they are compassionate towards it, have answers,... ...



Taylor’s Story

Taylor’s Story “I would say even three weeks after I came home it became a lot easier to get out of bed, I was not... ...