Julie’s Story

“I have never had so much attention paid to Morgan and me, even if you add up all her doctors’ visits together. The things that we found and discovered while we were here were because POTS Care went all the way back to the beginning of Morgan’s journey.”

Morgan had been sick for over 7 years, and her frequent fainting spells (numerous times a day) kept her from attending school. Morgan had seen countless specialists, and even been to Mayo Clinic. At POTS Care, we were able to locate issues that had been missed in the past, and provided guidance for her and her medical team to treat these issues.

INTERVIEWER: Thanks for talking with us today Julie. Could you tell us a little bit about Morgan’s journey so far?

PATIENT’S MOTHER: Okay, it started in 7th grade, so it has been a little over seven years. She had a virus, and then we went back to the doctor because she started some pain in her back. The symptoms started as pain and fatigue, but her postural orthostatic symptoms did not really start until about three years ago. She has been in and out of school since then, but most recently has not been able to attend school because of her frequent passing out. Well, now she cannot walk or stand for more than about two minutes without passing out, and if she is sitting in a wheelchair for more than about 15 minutes or straight upright, she passes out.

INTERVIEWER: So, you have clearly seen a lot of doctors before you came here…Were they able to help Morgan?

PATIENT’S MOTHER: We have tried everything, but nothing really helped. We have treated symptoms, but nothing has truly helped her functionality and it has gotten progressively worse.

INTERVIEWER: Do you think the care you received here was different than care you received by other doctors?

PATIENT’S MOTHER: Oh my God yes. I have never had so much attention paid to Morgan and me, even if you add up all her doctors’ visits together. The things that we found and discovered while we were here were because POTS Care went all the way back to the beginning of Morgan’s journey. It is something very significant that could have been found possibly a year ago, but everyone is just so apt to throw the label and “oh you have POTS, so therefore you should have this, this and this”; rather than digging as to why it is and believing Morgan, which Dr. Driscoll and the staff here obviously did.

INTERVIEWER: Were we able to locate underlying problems that had previously been missed?

PATIENT’S MOTHER: Shocker! Morgan may have a tumor on her pituitary gland. You can see it on a scan that has been seen by I do not know how many doctors, because they were not looking for anything having to do with that. If it was not a brain tumor they did not care. She also found binasal hemianopsia, blindness, which we did not know about either, and we had vision tests.

INTERVIEWER: Do you think we are using real science here?

PATIENT’S MOTHER: I think I have done voodoo science before and I think this is real science. Real science to me is locating a problem and then trying to figure out the cause of that problem and treat it and that is absolutely what you are doing.

INTERVIEWER: Do you feel you have been given enough guidance to continue moving forward with Morgan’s care?

PATIENT’S MOTHER: Yes. We just went through her preliminary treatment plan and yes, I have guidance. I also have been assured that I can call and ask any questions. So, yes I feel very comfortable, and my question from day one was just after my week here, then what? You know? And that was answered immediately.

INTERVIEWER: Thank you for talking with us today, Julie.