Postural Orthostatic Tachycardia Syndrome


What Happens the Week You Are at POTS Care?

How We Begin Your Evaluation

At POTS Care, gentle care means non-invasive testing whenever possible. We have found that many patients with POTS have inflammation that can worsen with invasive testing and procedures. Our approach is to get answers as gently and non-invasively as possible. To do so, our approach includes the following:

During your week-long evaluation, we will perform the following:

We begin by reviewing your previous medical records looking for clues as to the underlying medical reasons for your illness. Much like a “Dr. House team,” we ignore previous labels given you and start evaluating your case with fresh eyes. What was ruled out? And most importantly — What was missed? If you’ve ever wanted a team to review your case from the beginning, you’ve found it at POTS Care.

We review every sign and symptom you’ve experienced since becoming ill — and we have over 220 of them to consider! Only by paying attention to even subtle symptoms can the full picture of your illness become clear. Our extensive algorithms and spreadsheets then direct our team as to the next steps in your evaluation.

The eyes are the perfect place to look for clues as to the cause of illness in conditions that can affect both blood vessels and nerves. The eyes are the only place in the body we can look directly at blood vessels and the eyes also reveal the optic nerve (a direct extension of the brain). Other clues to autonomic dysfunction (dysautonomia) observed in the eyes are abnormal pupils and dry eyes. Non-invasive ocular testing can provide answers without trauma to the patient, yet POTS Care is the only autonomic clinic performing these important tests.

Many patients with POTS are told their blood work is “fine”, yet routine blood work is not generally sufficient to locate the cause(s) of Idiopathic POTS. Instead, we need to look much more closely at endocrine, immune, autoimmune, and inflammatory markers — at a minimum — in our search for answers. Only by staying firmly in the science and locating measurable, objective markers can we move beyond guessing as to the cause of illness — a critical step in patient recovery.

Testing and treatment is individualized because patients are not all the same. This is true even in members of the same family. We consider confounding medical conditions, response to treatment, potential sensitivities to medication, foods, and chemicals, and even genetic testing (including “23andme”) if it is available, when creating your treatment plan. And we never just treat the symptoms!